In the era of information and technology, the concept of data ownership and data sharing has become increasingly significant. We generate vast amounts of data every day, especially in healthcare and clinical trials, where our data holds immense value. But do we truly understand our rights as responsible data owners?
In a world where data is often considered the new currency, it’s crucial for us to understand our rights and responsibilities as data owners. Our health data is not just a collection of numbers and statistics; it is a representation of our unique genetic makeup, medical history, and lifestyle choices. By understanding the value embedded in this data, individuals can make informed decisions about how to manage and leverage their health information to benefit clinical study sites, research institutions, sponsors, and ultimately, humanity.
In a presentation at YPrime’s annual Innovation Network Gathering, Britt Gottschalk, CEO of Geno.Me, sheds light on the crucial aspects of data ownership. She explores the potential of monetizing health data, emphasizing how it can advance research and contribute to more personalized and effective healthcare solutions. By becoming active participants in the process, we can advocate for more regulated, inclusive, and equitable practices, ensuring that the benefits of data monetization are shared equally among all stakeholders.
As the digital landscape continues to evolve, embracing this active role in data ownership is paramount. Britt’s presentation serves as a call to action, encouraging clinical trial sponsors and the industry to explore the complexities of data ownership and its transformative potential in shaping healthcare, research, and data-driven innovation. Take a listen here:
Innovation and quality are at the core of everything we do as an industry to improve clinical trials. That’s why every year, we host the Innovation Network Gathering—a forum for brilliant minds from various backgrounds to come together to engage in thought-provoking discourse that sparks new opportunities for growth and change.